It sucks when you waste hours crying alone trying to let people sleep only to have it backfire and make you an asshole.

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  • 5 days ago

MS retired me at 45

Just packed up my favorite lens, favorite bag and 30#s of gear I spent a lot of my career with. A career you don’t retire from.

I thought over the last two years I had worked through this transition and it would just be a space making transaction with the income being earmarked for my future.

Turns out I was wrong.

It’s all just tape and bubble wrap until you put a shipping label on it and turn to see the holes where gear was. Gear that shot most of your fine art, wedding details, product and on and on with the bag that was on the bus with Willie and backstage with the likes of Wynonna, Clapton and Pavarotti.

Goodbye my friends. I’m so happy you didn’t have to retire with me.
Carry on with what you were meant to be…storytellers.

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  • #multiple sclerosis #invisable illness #early retirement #medical retirement #mylifewithms #depression #transition #mssucks
  • 5 days ago
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  • #multiple sclerosis #sleep apnea #sleep all day
  • 2 weeks ago
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So, here’s a weird little thing about me.
I can’t sleep if my arms are cold. It’s a surface thing. Like I leaned on an ice pack by my biceps.

The blankets or pj’s don’t help so…

I made arm socks.

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  • #Multiple Sclerosis #invisible illness #weird MS shit #weird ms symptoms #Living with MS #ms symptoms
  • 2 weeks ago

Unwanted Detox

So….
I’m all out of meds
I’m so lost without you…

Whatever.

I can’t get a doc and I’ve stretched ten antidepressants across three weeks and they’ve been gone for five days.

I have bobble head.
It sounds and or feels like I’m standing next to a road crowded with nothing but semi trucks rushing past me. I’m so far off my medication that I’m thinking I should just stay off until I find a decent doctor. This week is pretty flexible. I can sleep off the detox.

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  • #multiple sclerosis #invisible illness #depression #medical depression #detox #dancing with the stars
  • 2 weeks ago

ATTENTION

savanaugh:

I AM ON A MISSION. I AM GOING TO FOLLOW EVERY FUCKING BLOG ON THIS SITE. ALL OF THEM. HELP ME ACHIEVE THIS GOAL, INTERNET STRANGERS, BY REBLOGGING THIS POST AND I WILL FOLLOW ALL WHO REBLOG IT. E V E R Y O N E.

Go for it

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  • 2 weeks ago
  • 149565

Having MS is like having a really shitty friend who won’t leave.

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  • #multiple sclerosis #invisible illness #my life with multiple sclerosis #my life with MS #ms symptoms
  • 3 weeks ago
  • 4

FMR

So.
I’m falling slowly into another deep depression.

Physically, it’s just another day.

Emotionally, it’s just crap.

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  • #multiple sclerosis #invisible illness #depression #life with MS
  • 1 month ago
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Heat Intolerant Monkey

If you have MS related heat intolerance then like me you probably spent the majority of the summer in the a/c.

Well this week the temp hit the 70’s!
This means it’s finally cool enough to be outside and I may or may not wear shorts.
So…I decided to shave.


It looks like I killed a monkey in my tub.

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  • #multiple sclerosis #invisible illness #ms symptoms #heat intolerance #life with MS
  • 1 month ago
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